Pathways for End Stage Lung Disease - For FAMILIES
When is it time for the Pathways End Stage Lung Disease Program?
Answering these simple questions may serve as a guide:
- Are your medications no longer effective in managing your symptoms?
- While at rest, do you still have difficulty breathing or other symptoms that prevent you from doing things you want and need to do?
- Have you had two or more emergency room visits or hospitalizations in the last 6 months for the same illness or symptoms?
- Do you have other health issues such as kidney problems or heart disease?
- Have you had more than two respiratory infections in the last year?
- Are you seeking aggressive comfort care to improve your quality of life?
If you answered "yes" to one or more of these questions, now may be an appropriate time to discuss Hospice of Cincinnati with your physician.
Schedule an "information only" visit, where you’ll meet with one of our nurses to learn more about the program and hospice in general. Please call the referral center at (513) 792-6900. You can also learn more by reading the following literature and materials posted on our website.
Pathways for End Stage Lung Disease Literature and Materials
- Pathways Overview for Families
This mini-brochure provides an overview of the program and clearly outlines how Hospice of Cincinnati's Pathways program can benefit patients and their families.
- Breathing Changes at the End of Life - What A Caregiver Should Know
Your loved one’s end stage lung disease may cause them to be anxious and fearful at times. Their condition
may change rapidly. This article explains what to
expect, how to respond in ways that are helpful, and provides some guidelines for symptom management.
- Shortness of Breath Scale
This resource can be used to rate your shortness of breath. It considers how
you feel, what symptoms you are experiencing,
what medications have worked for you in the past, and includes a list of interventions for things that YOU can
do NOW based on your score.
End Stage Pulmonary Disease Triggers
• Oxygen dependent
• Recurrent severe exacerbations requiring hospitalization
• Decreased functional status
• Weight loss
• Co-morbidities—lung CA, stroke, heart
• Hospitalized 2x in 6 months
• Course of illness is variable depending on severity